Message from the EAS FHSC Principal Investigator, Prof. Kausik K. Ray
About a year and a half ago Imperial College London in conjunction with the European Atherosclerosis Society (EAS) started to establish a global initiative for improving detection and treatment of individuals with Familial Hypercholesterolaemia (FH). The EAS Familial Hypercholesterolemia Studies Collaboration (EAS FHSC) is now a global network of investigators from over 50 countries worldwide who have formally committed to contributing to the initiative and this network has become the largest collaboration ever developed around FH. The present is the 1st newsletter of EAS FHSC collaboration. We hope that this newsletter will keep you updated on the progress of the project and milestones that the consortium will achieve in upcoming months. This newsletter reflects on the many achievements of the network, and EAS FHSC most recent highlights.
The EAS FHSC consortium, research and outreach endeavours continue to grow, and at the same time, participating researchers continue to make significant breakthroughs in FH research. We are honoured to have a consortium of experts on FH from around the globe. The partnership among each and every lead investigator in different parts of the world is a critical component of the EAS FHSC mission. Through your support and participation, the present initiative will be able to gather data on individuals living with FH worldwide.
We have made great progress in building the bespoke secure system for data sharing and management, and we are on the cusp of implementing an application in the system for secure data sharing via logging into the website. Next year promises to be an exciting year in the progress for the project when pooling and harmonization of the first datasets received will begin. Ultimately, state-of-the-art information generated using the global data will help in promoting early diagnosis and more effective treatment of this condition.
The success of this project relies on each lead investigator and contributing investigators’ dedication to the EAS FHSC mission so that we can complete the journey which we have started together.
Please stay connected to us, stay informed, keep us updated and let us know what is important to you and your partners. We hope in time to highlight your work and your achievements. This is your newsletter and we are here to work with you. Thank you for your support and collaboration.
Read the full EAS FHSC Newsletter Issue 1, October 2016 here